"Not for the faint of heart..."

"He's lucky he has you. This diagnosis is not for the faint of heart." Those words from Kaleb's pediatrician vibrated loud and clear in my head around 11pm last night when he woke up for the 4th night in a row screaming louder than I've ever heard before. Eddie and I try to do everything we can to console him, but nothing works. We eventually just sit with our child screaming in pain praying for God to take it away. 

This week has been absolutely horrible. Kaleb's symptoms get worse each day and Friday can't come soon enough. It is incredibly heartbreaking to watch your child transform from a happy, sweet baby to just a body wrecked with pain and ravaged by disease. He can barely eat, doesn't sleep, and hurts 24/7. Yesterday I read some stories from older teens and adults and they said the pain is excruciating, they feel like they are having a heart attack, and have a choking feeling all the time because of the swelling in the throat. My poor child, no wonder he cries out so loudly!

Praying for peace. Praying for relief. Praying for strength, rest, patience, wisdom and ultimate healing.