9.27.2013

Glad that's over...

Whew. Eddie and I are both full of relief that all Kaleb's procedures from today are over. Here's a recap of today's events:

We arrived at 7am and waited in the waiting room quite a while. In the meantime, all the other people that came in after us were called back before us. When we finally got back there, they said it was too late to give Kaleb the Versed, which was a medicine to make him calm and relaxed before they did the IV. She said someone from IV therapy was there to do it (because none of the nurses there wanted to do it on someone so small) and she couldn't wait around until the medicine kicked in. So we had to choose - give him the medicine and let someone do the IV that really wasn't comfortable with it to begin with, or let IV therapy do it without the medicine. As hard as it was, we chose the second option. (Let me just say, this mama wasn't happy about all of it...) The IV was the worst part of the whole thing and most upsetting to watch. Once that was all over, it was a big sigh of relief!!

Everything else happened pretty quickly. I didn't know Eddie and I would be staying in the room with them while they performed the endoscopy and colonoscopy, and I almost thought I was going to pass out a few times...(I can't handle anything medical.) The endoscopy showed that Kaleb's esophagus was abnormal. It was swollen so much they couldn't see any blood vessels like you usually can, and it had these imprinted lines down it which further pointed to the Eosinophilic Esophagitis diagnosis (although they can't confirm until biopsy results are back next week.) The colonoscopy was normal, which we were incredibly thankful for!!

I explained to the dr. that we are supposed to leave for vacation next week, but with all the pain Kaleb's having, we weren't sure if we could go at this point. He's hysterical and inconsolable at night time, and that's not good for staying in a condo with other people! She has enough evidence to believe the EE diagnosis is the correct one, so she gave us prescriptions to start treatment right away. When it's confirmed next week, then we'll start talking about dietary changes, like the formula diet. We are praying the medicines take effect soon so that we can still go on vacation!!

Thanks so much for all the texts, calls and prayers for our little boy. We are so glad the testing is behind us and we can move on with treatment. Please keep praying that he feels better soon!

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